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In an effort to provide patients and loved
ones with as much information as possible,
we have we have compiled a list of helpful organizations and
websites. If there is something not in our list that you
feel should be added please contact us.
Additional information and helpful resources can be found at:
www.caringinfo.org.
Aging With Dignity
Purchasing directions for "Five Wishes," a simple document to
put your "wishes" in writing should you become seriously ill and
unable to speak for yourself.
Telephone: 850-681-2010
www.agingwithdignity.org
Americans for Better Care of the Dying
A non-profit organization dedicated to social,
professional, and policy reform to improve care for persons with
serious illness and their families.
Includes Agitator's Guide: 12 Steps to Get Your Community
Talking about Dying.
www.abcd-caring.org
Caregiving Web Site
Information about health and wellness of the
family caregiver, bill management, home care help, community
support, free messaging.
www.caregiving.com
End-of-Life: Exploring Death in America
A series from National Public Radio including reference lists,
broadcast transcripts, and Real Audio clips.
www.npr.org
Growth House: Guide to Death, Dying, Grief, Bereavement,
and End-of-Life Resources
An award-winning gateway to resources for life-threatening
illness and end-of-life issues.
www.growthhouse.org
Hospice Association of America
228 7th Street SE
Washington D.C. 20003-5809
Phone: 202-546-4759
An affiliate of the National Association for Home Care with
consumer information about how to select a hospice program.
www.nahc.org
Hospice and Palliative Care Federation of Massachusetts
A guide to Hospice and Palliative care in Massachusetts for
patients, family member and friends.
Telephone: 781-255-7077
www.hospicefed.org
Hospice Foundation of America
Resources, hospice locator guide, education opportunities, and
general hospice information.
Telephone: 305-538-9272
www.hospicefoundation.org
Innovations in End-of-Life Care
An international, online journal, committed to more humane,
comprehensive, and coordinated care for dying persons and their
families.
Telephone: 617-618-2185
www.edc.org/lastacts
National Hospice and Palliative Care Organization
1731 King Street, Suite 100
Alexandria, Virginia 22314
Hospice Helpline: 1-800-658-8898
National non-profit organization devoted exclusively to hospice.
For lists of hospices by county and general information about
hospice.
www.nhpco.org
Massachusetts Compassionate Care Coalition
A coalition of individuals and organization who seek to improve
end-of-life care in Massachusetts.
Telephone: 617-964-1196
www.massccc.org
Massachusetts Health Care Decisions
P.O. Box 417
Sharon, MA 02067
Non-profit organization that provides public and professional
education on ethical issues in health care, including those at
end of life.
Massachusetts Medical Society
A professional membership organization providing a web site on
health care proxy, advance directives, discussion guides, and
links to other resources.
www.healthcareproxy.org
Partnership for Caring
Resource for living wills and medical powers of attorney.
Telephone: 1-800-989-9455
www.partnershipforcaring.org
US Living Will Registry
The Registry electronically stores advance directives and makes
them available directly to hospitals across the country through
an automated system. This storage service is free and
confidential.
www.uslivingwillregistry.com
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